Jeremy at work

Jeremy has been working a lot of overtime this week. They have had perfect weather for prescribed burning and they are taking advantage of it! Jeremy came home last night with a newspaper and this was featured on the front page. So I GUESS all those comments I make about how him and his coworkers do nothing all day long can be argued now that there is visual proof of him actually doing something productive.

The Terrible Twos

I do believe I am now experiencing the TERRIBLE TWOS, only it is in a way that only Goober could decide to do it. As you all know what had the backpack incident last week. Well this time it was the hat/sunglasses issue. It all started yesterday. It was 78 degrees out and sunny. So we put our sunglasses on and a hat to play outside. When it was finally time to go to bed. I got Goober into his PJ's and said for him to take his hat off. NO! This in sued for about 10 minutes until I gave up. He fell asleep instantly.

An our later I tiptoed into his room to remove the glasses and hat. As soon as I touched them he woke up screaming. Not a polite cry, no the type that makes the neighbors call the police because yo are beating your child cry. Back his hat and glasses went on. He woke up 3 times during the night and wanted me to come in and fix his glasses or hat.

At breakfast, well let me just say the hat came off, but the glasses stayed.

Man he is stubborn. I sure don't know where he gets that from? =)

Spring Fever....Goober Style

Adam has spring fever, like the rest of us. He wants to go outside and run and play, unfortunately the weather has not been too cooperative. Today we managed to walk back from dropping the car off to get repairs. That is a 4 block stroll, that took about 45 minutes to accomplish. We then walked to the post office. Apparently this wasn't enough for him! He insisted that I put his backpack on...then a fit ensued at the door until I mentioned nap time. Then he told me, "NO NAP!" I told him yes. "ELMO! ELMO!" I put 2 and 2 together. So down he went with the back pack. The kid never stops amazing me with his stubbornness!

Here he is trying to escape out the door...

Here he is being tucked in, notice the cheese grin. Gotta love that stage!

Here is the final result.....

After the nap what else was there to do, but eat a snack, with the backpack on. DUH!

Klippel-Trenaunay Syndrome

I often forget the people aren't aware of the exact condition that Adam has, so as part of this blog I am going to give a synopsis of what Adam has. If you have any questions about KT syndrome don't be afraid to ask. I am always willing to help educate people on my little boy.

In general KT is best defined as the following:

The K-T syndrome is a rare congenital malformation that may include the following:
Port-wine stain or "birthmark" (cutaneous capillary malformations)
Soft tissue and bony hypertrophy (excessive growth of the soft tissue and /or bones)
Venous malformations & lymphatic abnormalities Complications may include bleeding, cellulitis, venous thrombosis, or pulmonary embolism. Associated abnormalities in other systems, such as gigantism of toes, hand and feet anomalies, lymphedema, or involvement of the abdominal and pelvic organs may also occur.
K-T usually is limited to one limb, but may occur in multiple limbs and/or head or trunk area. Internal organs may be involved. Each case of K-T is unique and may exhibit the above characteristics to differing degrees.

Now within the world of KT Adam is slightly different. He is affected in all of his limbs except for his left arm. His port wine stain is over 3/4 of his torso and apparently the syndrome has affected the development of his teeth. We are not sure of his internal organs, we like to believe they are fine, but we won't know until he is about age 4 when he can have an MRI performed. We go to the University of MN twice a year to meet with specialists. He has to wear special orthopedic shoes, and sock are a challenge to find. We are blessed that The Syndrome has not seemed to affect him cognitively. The severity of his case is classified as about average, with the potential to worsen if not managed.

So, this has been my full time job over the last 2 years of my life. How do I manage? A strong faith, a good family, and an the advice of Aunt Karla who told me, "You are his only advocate"

Teeth

We went to the dentist last week to have our biannual visit. Everyone was fine, but it was noted that Goober was missing a set of molars. The dentist thought nothing of it, but it got me thinking. So I called Adam's grandparents to find out if it ran in the family and no one recalled it existing.

I went to one of the KT boards that I am part of due to Adam's condition and posed a question about teeth, asking if anyone else is missing teeth or has problems. Amazingly I got posts from numerous people telling stories of thier children having abnormal teeth issues.

How can a condition that is classified as being vascular, lymphnatic, and bone enlargement affect teeth? It is a mystery to me. I am just glad to know that I will need to watch Adam's teeth closely as he is growing up.

Lunch with Goober

Today Adam and I were eating lunch and chatting away the best that a 31 year old and a 2 year old can, when this dialogue came up. Now mind you Adam for some reason has started calling his daddy Jeremy...

Adam: Where's Jeremy?

Me: He's at work.

Adam: Oh really!

Just to add to this every word was completely formed. I felt like I was talking to an adult...This kids vocabulary never stops amazing me.

Our House....the kitchen

As most of you know Jeremy and I purchased a house in Whitehall about 2 months ago. I have been slooooooooowly putting the house together. yesterday, in a brief moment of time, my kitchen was clean enough to take some pics. This one of our "projects" for the future, but for now it will do.

Welcome....

After a few years of requests and a few threats I have finally decided to start blogging about the adventures of myself and family as we move and grow. I hope you will enjoy the stories and lessons. I look forward to letting everyone into our little life in Montana.